Powering research to treat Friedreich’s Ataxia
Dear FA family,
Although the circumstances of our meeting are difficult, we are glad that you have found the Friedreich's Ataxia Research Alliance.
Leading to the discovery and advancement of treatments for FA
Join a passionate community and change the course of this rare disease
Apply for a research grant and make an impact
Work with an experienced research community
Utilize FARA resources to help optimize the pace of research
Latest news from our community.
Congressional Resolution Passes to Designate September 25 as “National Ataxia Awareness Day”
AdvocacyPapillon Therapeutics Receives Orphan Drug Designation from the U.S. Food and Drug Administration for PPL-001 for the Treatment of Friedreich's Ataxia
Industry NewsStealth BioTherapeutics Awarded Grant from Friedreich’s Ataxia Research Alliance and FARA Ireland to Develop Investigational Mitochondrial Therapeutic SBT-589 for Friedreich’s Ataxia
FARA News, Industry News, ResearchMeet the 2024 FARA Fellows
FARA News, Research
FA Community Conversations Genetic Therapies Webinar: Recording Available on YouTube
Education
FARA Celebrates 16 Years of Funding Adaptive Cycling Equipment Through The Ataxian Athlete Initiative (AAI)
rideATAXIA
United Against Ataxia Hill Day 2024 – Registration open!
Advocacy, FARA NewsAugust 2024 - Advocacy Newsletter
Advocacy
Join us for FA Community Conversations – Genetic Medicine on August 29, 2024
EducationLarimar Therapeutics Reports Several Updates on Nomlabofusp FA Program in Q2 2024 Operating and Financial Results
Industry NewsJob Opening – Accounting Specialist
FARA News
FARA Advocates for Effective Inclusion of Children Early in Clinical Trials at Pediatric Inclusion Roundtable
Advocacy, FARA News
Our upcoming events.
FARA & CHOP FA Symposium
The FA Symposium is a day-long event that provides individuals and families affected by FA with up-to-date information about Friedreich’s Ataxia research and an opportunity to meet others in the community. There is an option to participate in-person or virtually.
Education
#CureFA Baseball Exhibition Game
Head Coach Tracy Archuleta and Indiana State baseball are set to host the fifth annual CUREFA Game sponsored by the West Side Nut Club!
Grassroots
The FARA Energy Ball
The FARA Energy Ball is a high-energy gala that brings together hundreds of supporters to raise funds for critical research into Friedreich's ataxia (FA).
FARA Energy Ball
Mattoberfest
Enjoy drinks, cornhole and food trucks!
Grassroots
rideATAXIA Dallas
rideATAXIA
Team FARA: TCS New York City Marathon
FARA has been named an Official Charity Partner for the 2024 TCS New York City Marathon. Six members of Team FARA will run the marathon to redefine what is possible when we work together towards a common goal- treatments and a cure for Friedreich's ataxia (FA). FARA's entries for this event have all been claimed. Please consider joining our waitlist should entires become available.
TeamFARA
International Congress for Ataxia Research (ICAR)
Ataxia UK, National Ataxia Foundation (NAF), Friedreich’s Ataxia Research Alliance (FARA) and Ataxia Global Initiative (AGI) are partnering to host the International Congress for Ataxia Research (ICAR) 2024.
Research
BBQ Love Fest
BBQ Love Fest was born out of the love of Bar-B-Que, with renowned pitmasters from all over the country. Along with local Cook Teams competing for your vote as who is the best local pitmaster. Mix incredible music all day long and find out how Tampa does BBQ Love Fest. BBQ Love Fest is more than a good time, it’s a philanthropic event that supports FARA.
Grassroots